Updates on Gavin Morris
December 6, 2013 marks Gavin's +365 days post stem cell transplant. Those who have unfortunately experienced this in some way understand the significance. From the day of a stem cell transplant, everyday is then known as +1 of your "new birthday" or a fresh start at life after having your entire immune system wiped clean with high dose chemotherapy.
Compared to what the possible risks and complications were in transplant (more than you'll ever care to know), Gavin did exceptionally well through the entire process and was out in 3 weeks time. But, at the same time, it was one of the scariest, trying and most uncertain times of his treatments.
He was NED (no evidence of disease) his set of scans after the transplant. He also relapsed in a devastatingly short and viscous way shortly after our good news.
So, why would I bother to keep track of every (+) day since then even though the transplant didn't work?! Because it's another day to be thankful for, ...<< MORE >>
I'm thankful for so so many things this year. It would be nearly impossible for me to list everything and everyone that has touched our lives in such amazing ways. So thank you to my Facebook family and friends for being apart of our lives, no matter how big or how small...
Today I am thankful for the little things that my morning consisted of... That when Gavin woke up vomiting, that his NG tube didn't come out and I have to put it back down again. That Greyson woke up in the midst of this standing at his door holding all of his blankets screaming, "SOMEBODY!" and waited ever so patiently as if he understood. That I have a husband asleep on the couch that was up nearly half the night with Greyson but wakes without a fuss or question when I need help. Also for my precious, irreplaceable grandparents who pick up when things get crazy and do it with such grace.
No matter what the situation, ...<< MORE >>
Gavin's counts recovered enough for discharge today! Scans this week!
Gavin is being admitted with a neutropenic fever. He's feeling pretty rough right now, as he has mouth sores as well as thrush again in his mouth. Lots of r&r in his future... Continued prayers please.
Wow. What an amazing day! Not only did we have a great turn out at The Lemon Run 5K for Team Gavin Strong, we also were able to spend much needed quality time with family, friends (here and 8 hrs away) and thousands of people that support our goal to find a cure! The race was amazing and I had the HONOR to meet Alex Scott's father, Jay. I was unable to control my emotions as I'm standing face to face with someone who's raised over 33 million dollars to help fund a cure in honor of his sweet girl that battled the same disease as Gavin. Thank you to ALL who supported this event and our team in anyway.
Gavin and Greyson got to FaceTime BATMAN and BATGIRL from the spaghetti dinner and I got to see some of my faves (tears of joy)! My boys were literally on cloud 9 talking to them. They remain in awe of the heartfelt kindness shown to them by someone they look up to. I remain amazed by the continued support our WV communities are providing for my ...<< MORE >>
Six rounds of chemotherapy, major surgery, 12 radiation treatments, a stem cell transplant, being told Gavin is NO EVIDENCE OF DISEASE, 2 rounds of antibody therapy and retinoic acid, a devastating relapse, an emergent trip to Philadelphia (with no return) two more cycles of chemotherapy, two cycles of MIBG therapy, another stem cell rescue, a progression of disease yet again and another three rounds of chemotherapy later... And we are nothing but grateful and thankful.
That's my November thankfulness all wrapped into one big "whew"! That sentence made that sound pretty easy!
Gavin is getting his third round of chemo this week and he's tolerating it pretty well so far. He is the closest to HIS "normal" that he's been since August. He'll get repeat scans this month to determine his disease progress.
"Attitude is the difference between an ordeal and an adventure."
I choose adventures.